ALS Support Programs and Advocacy

Caregiver Support, Condition Specific Support, Disability Services, Medical Equipment, and Mental Health - Adult

Provided by ALS Society of BC

The ALS Society of BC is dedicated to providing direct support to ALS patients, along with their families and caregivers, to ensure the best quality of life possible while living with ALS.
Receiving an ALS diagnosis is overwhelming and leads to many questions and concerns. The society provides various programs and services at no cost to ALS patients and their families; however, patients must be registered patient members or a registered caregiver, friend or family member to access them. There is no membership fee for ALS Patients.

Programs and services include:
  • Equipment Loan Program: Designed to help those living with ALS cope with the daily challenges of decreasing mobility and independence by providing basic and essential assistive devices at no charge. This includes mobility equipment, lifts, beds & accessories, bathroom aids, and communication devices.
  • Support Groups: For patients, caregivers, family members and friends to discuss issues related to living with ALS or PLS. These groups offer an open, friendly, and safe environment for people to share their experiences and challenges. Trained volunteers from ALS BC facilitate the groups and act as the main point of contact between the Society and the ALS, PLS, and Caregivers’ communities.
  • Psychological Treatment Program: The ALS Society of BC has dedicated Psychologists and Registered Clinical Counselors, who are a group of ALS-trained professionals to give much–needed therapy and counselling to people affected by ALS or PLS. Providers can help you cope with emotions and concerns, such as fear, anxiety, depression, family tensions, relationship problems, lifestyle changes, financial stressors and much more.
  • Camp Alohi Lani: A 4-day camp getaway that provides a safe setting where youths aged 8 to 17 with a parent or grandparent living with ALS can come together, receive support for their journey with ALS. Campers have the opportunity to connect with other youths from across BC who are affected by ALS in their families. There is no cost to attend with a maximum of 30 participants
  • Mobile Clinics: In partnership with Vancouver Coastal Health and the ALS Centre at GF Strong Rehab Centre, the ALS Society of BC provides mobile clinics to outlying communities to offer follow-up appointments to patients who can no longer visit the ALS Centre.

604-278-2257

Toll Free: 1-800-708-3228

Public email: info@alsbc.ca

Website: https://www.alsbc.ca

#1228, 13351 Commerce Parkway, Richmond, British Columbia, V6V 2X7

Cost: No cost

Availability

Service area: Province-wide + show cities

Service area cities: 100 Mile House, Abbotsford, Agassiz, Aldergrove, Alert Bay, Alexis Creek, Anahim Lake, Anmore, Armstrong, Ashcroft, Atlin, Bamfield, Banff, Barriere, Bella Bella, Bella Coola, Black Creek, Blue River, Boston Bar, Bowen Island, Brentwood Bay, Burnaby, Burns Lake, Cache Creek, Calgary, Campbell River, Canmore, Castlegar, Cathedral Grove, Cawston, Chase, Chemainus, Cherryville, Chetwynd, Chilliwack, Christina Lake, Clearwater, Clinton, Cobble Hill, Comox, Coombs, Coquitlam, Cortes Island, Courtenay, Cranbrook, Crawford Bay, Creston, Cumberland, Daajing Giids (Queen Charlotte City), Dawson Creek, Dease Lake, Deep Bay, Delta, Denman Island, Duncan, Edgewood, Elkford, Enderby, Fanny Bay, Fernie, Fort Langley, Fort Nelson, Fort St. James, Fort St. John, Fraser Lake, Fruitvale, Gabriola Island, Galiano Island, Gibsons, Gitlaxt'aamiks (New Aiyansh), Golden, Gold River, Grand Forks, Granisle, Greenwood, Hanceville, Harrison Mills, Hazelton, Hope, Hornby Island, Horne Lake, Houston, Hudson's Hope, Invermere, Kamloops, Kaslo, Kelowna, Keremeos, Kimberley, Kitimat, Kyuquot, Ladner, Ladysmith, Lake Country, Lake Cowichan, Langford, Langley, Lantzville, Lethbridge, Lillooet, Lions Bay, Logan Lake, Long Beach, Lumby, Lytton, Mackenzie, Maple Ridge, Masset, Mayne Island, McBride, Merritt, Merville, Midway, Mill Bay, Mission, Nakusp, Nanaimo, Nanoose Bay, Nelson, New Denver, New Westminster, Nitinaht, North Delta, North Saanich, North Vancouver, Okanagan Falls, Oliver, Osoyoos, Oyama, Parksville, Peachland, Pemberton, Pender Harbour, Pender Island, Penelakut Island, Penticton, Pitt Meadows, Port Alberni, Port Alice, Port Coquitlam, Port Hardy, Port McNeill, Port Moody, Powell River, Prince George, Prince Rupert, Princeton, Quadra Island, Qualicum Beach, Quathiaski Cove, Quesnel, Revelstoke, Richmond, Riske Creek, Rock Creek, Rossland, Saanich, Saanichton, Salmo, Salmon Arm, Salt Spring Island, Sardis, Saturna Island, Sayward, Scotch Creek, Sechelt, Shawnigan Lake, Sicamous, Sidney, Skidegate, Slocan, Smithers, Sointula, Sooke, Sorrento, South Surrey, Sparwood, Spences Bridge, Squamish, Stewart, Summerland, Sun Peaks, Surrey, Tahsis, Tatla Lake, Telkwa, Terrace, Tofino, Trail, Tsawwassen, Tumbler Ridge, Ucluelet, Valemount, Vancouver, Vanderhoof, Vernon, Victoria, West Kelowna, West Vancouver, Whistler, White Rock, Williams Lake, Winlaw, Witset, and Yale

Service Types Provided
Caregiver Support
Condition Specific Support
Disability Services
Medical Equipment
Mental Health - Adult
Ways to Access
  • Provided at multiple locations
  • Provided in a group in-person
  • Provided online: email / video / on-line

The listing of this service in Pathways is not a recommendation or endorsement by Pathways.

Pathways does not provide medical advice. If you have an emergency please call 9-1-1. If you require assistance navigating services please call 8-1-1.

For general inquiries or for assistance, please email us:

community-services@pathwaysbc.ca

If you are requesting clinical access to medical Pathways, please provide the following information via the email above:

  1. First Name
  2. Last Name
  3. Email
  4. In which city/town do you work?
  5. What is your role? E.g. Family Physician, Office Staff, Medical Resident
  6. Employer Name (for office staff)
  7. Office Phone

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